Wednesday May 27

This afternoon the site where dad's feeding tube is starting bleeding again. I have no idea what is going on and I don't think they do either. I want a CT scan done to make sure there isn't any bleeding internally. I am really worried about this. The nurse said the PA wanted to have some blood work done to see what it shows and then maybe a CT scan. I think whoever switched out the tube messed up somehow. Hopefully this will all be taken care of tonight. While all this is going on they have to stop dad's tube feedings and he was already complaining about being hungry. Something has to be done and before the weekend.

The staff is trying really hard to get me to send dad to a nursing/rehab place for a few weeks. They keep saying how hard it will be to take care of dad and something about having to have a lift to get him out of bed and how will I get him into the car to go to the doctor, and can I do this that and the other. I finally agreed to talk about some place in Advance -- Bermuda Commons Nursing and Rehab -- but I don't know. I called the rehab at Whitaker (which is at Forsyth Hospital) and they said they would talk to dad's case manager to see if he could be a candidate for their program. I know I have been told from day one they wouldn't take him because he can't do 3 hours a day physical therapy, but I wonder.......it doesn't have to be 3 hours all at once, and they do give speech therapy -- which dad is getting -- so I know that shouldn't wear him out too much. Maybe I am just grabbing at straws. I just don't trust a nursing/rehab to take good care of him and to see that he actually gets the therapy he needs. Maybe I can't take care of him at home, maybe it will be a thousand times harder than I think, but I don't know what to do. And now with all the problems with dad's feeding tube he can't do therapy because they are afraid of what might happen.

This is all getting way to complicated. I don't know what to do. I am coming apart. What should I do?

Keep those prayers going up for dad and me.

Kathy